The melting pot revisited: Supporting research into the genetic diversity of the American population
Summary :
Table of Contents
- Abstract.
- Introduction.
- From cartography to ethnography: The implications of the human genome project.
- Nazis, Tuskegee and Native Americans: Eugenics fear and modern protections.
- The primacy of individual over societal good.
- The death of nurture?
- Genetic variability and insurance coverage: An opportunity for innovation?
- Colorful genes: Race as a meaningless biological distinction.
- Genetic research as a threat to the current power structure.
- Extra-medical rationale for investment in genetic diversity research.
- Research for the sake of knowing: The appeal of the Black Box.
- Conclusion.
- Endnotes.
Abstract
The advent of the genomic era has brought with it a host of opinions regarding to what ends genetic tools ought to be applied. There is a growing interest in research that will illustrate the genetic diversity of populations. Advocates suggest that research detailing unique features of populations will allow for the development of medications specific to genomic characteristics, and will allow groups to more effectively assess their need for preventive medicine. Critics of research into genetic diversity ring bells that warn of genetic research as the modern eugenics, the tip of the iceberg for discrimination against individuals who are members of particular groups that have been associated with an increased frequency of an allele. The stormy history of racial relationships in the United States casts a dark shadow over the glaring potential of such research. In light of the potential drawbacks it is essential to recognize the evolution of american institutions and the fundamental shift in the principles of bioethics from a platform of group benefit to a system that values autonomy above most other considerations. research into the genetic diversity of the american population must be taken up within a context of meaningful, enforceable guidelines to ensure ethical use of information.
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